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Privacy Policy

This Privacy Notice is effective as of November 13, 2019

 

At MyoKardia, Inc. (“MyoKardia”, “We”, “Us” or “Our”), We are committed to ensuring the privacy of our users. The Privacy Notice explains how MyoKardia collects, uses, retains and discloses Personal Data.

 

In addition, your access to and use of the MyoKardia’s website is subject to the Terms of Use.

 

What is Personal Data?

 

Personal Data means any information relating to an identified or identifiable natural person (“Data Subject”), such as an address, telephone number, e-mail address, date of birth, gender, data concerning health or geographic location (“Personal Data”).

 

Data controller

 

For the purposes of EU data protection laws, MyoKardia whose registered office is located at 333 Allerton Ave. South San Francisco, CA 94080 is the Data Controller, i.e. the company responsible for, and which controls the processing of, your Personal Data.

 

Data Protection Officer

 

For the purposes of EU data protection laws, MyoKardia appointed a Data Protection Officer (DPO).

 

You may contact our DPO as follows:

Xavier Gobert

+32 2 896 55 53

myokardia.dpo@mydata-trust.info

 

Data Protection Representative

 

For the purposes of EU data protection laws, MyoKardia also appointed a Data Protection Representative (DPR).

 

You may contact our DPR as follows:

MyData-TRUST S.A.

Boulevard lnitialis 7, B3

BE-7000 Mons 

+32 2 896 55 53

myokardia.dpr@mydata-trust.info 

 

Personal Data we may process

 

 

Purposes and legal basis of the processing activities

 

Purposes

Legal basis 

To answer to your questions regarding our company.

Data subject’s consent/legitimate interest of MyoKardia.

In response to your application for a job.

Data subject’s consent/processing is necessary in order to take steps at the request of the data subject prior entering into a contract.

To improve our website.

Legitimate interest of MyoKardia.

To administer our clinical trials as required by law.

Legal obligation to which MyoKardia is subject and the processing is necessary for reasons of public interest on the area of public health.

To report on our clinical trials, including data analysis, testing, research, and statistical purposes.

Legitimate interest of MyoKardia and the processing is necessary for scientific research purposes.

To protect or exercise our legal rights or defend against legal claims.

Legitimate interest of MyoKardia and processing is necessary for the establishment, exercise or defence of legal claims.

 

Our disclosure of your Personal Data

 

We want you to understand when and with whom We may share the Personal Data We collect:

 

Transfers of your Personal Data

 

MyoKardia will put in place appropriate safeguards to protect your Personal Data in case of transfers.

 

Personal Data retention

 

Your Personal Data will be retained only for so long as reasonably necessary for the purposes set out above, in accordance with applicable laws.

 

Your rights 

 

As a data subject, you have the possibility to request the exercise of the following rights:

 

These data subject rights may be subject to limitations and/or restrictions. Therefore, the exercise of your rights will be subject to a case-by-case analysis.

 

Requests should be submitted in writing to our DPO at myokardia.dpo@mydata-trust.info.

 

As a data subject, you also have the right to lodge a complaint with the competent supervisory authority in the EU Member State where you reside or work, or in the EU Member State where the alleged violation took place.

 

You will find the contact details of the different Data Protection Authorities at the following link:

https://ec.europa.eu/justice/article-29/structure/data-protection-authorities/index_en.htm

 

Security

 

MyoKardia takes appropriate technical and organizational measures to ensure a level of security appropriate to the risk for the rights and freedoms of natural persons, including measures to protect Personal Data from accidental or unlawful destruction, loss, alteration, unauthorized disclosure of, or access to Personal Data. 

 

Contacting MyoKardia

 

Please contact our DPO at myokardia.dpo@mydata-trust.info if you have any questions about the processing of your Personal Data.